Connect With Us
Whether you have questions about CLN4 Batten disease, want to learn more about our research initiatives, or are interested in supporting the Hope 4 Batten Foundation, we welcome your message.
Together, we can raise awareness, advance research, and bring renewed hope to families affected by this rare disease.
Connect With Hope 4 Batten Foundation
Every conversation helps move CLN4 research forward. Whether you are a family member facing a CLN4 diagnosis, a researcher or clinician working on Batten disease, or someone who simply wants to help, we would be glad to hear from you. Families affected by CLN4 often feel alone with a disease few people have heard of, and connecting with others who understand can make a real difference.
We welcome questions about our mission and the research we support, as well as ideas for partnerships, fundraising events, volunteer opportunities, and employer matching gifts. If you would like to share your own experience with CLN4 or learn how to get involved, please reach out using the form below. A member of our team will respond as soon as possible.

