Effective Date: October 12, 2026

Our Commitment to Your Privacy

Hope 4 Batten Foundation, Inc. (“Hope 4 Batten,” “we,” “us”) respects the privacy of everyone who visits hope4batten.org, supports our work, or contacts us. This Privacy Policy explains what information we collect, how we use it, and the choices you have. We collect only what we need to operate the foundation, process donations, and keep supporters informed about CLN4 research. We do not sell, rent, or trade your personal information.

Who We Are

Hope 4 Batten Foundation, Inc. is a New York nonprofit corporation dedicated to funding research toward treatments for CLN4 Batten disease. You can reach us at [privacy@hope4batten.org] or [P.O. Box ###, Manlius, NY ZIP].

Information We Collect

Information You Give Us

• Donations: your name, email address, mailing address, phone number (optional), donation amount and date, and whether a gift is made in honor or in memory of someone. Payment card or bank details are entered directly with our payment processor; we do not see or store full card numbers.
• Email updates: your email address and, if you choose to provide it, your name.
• Contact forms and emails: your name, email address, and whatever you choose to include in your message.
• Event registrations and volunteer inquiries: contact details and any information needed for the event or activity.

Information Collected Automatically

When you visit our website, our hosting provider and website software may automatically record basic technical information, such as your IP address, browser type, device type, pages visited, and the date and time of your visit. We use this information to keep the site secure and working properly.

Health Information

We do not ask for medical or health information through this website. If you choose to share personal or family health information with us, for example in an email about CLN4, we will treat it as confidential, use it only to respond to you, and never publish it without your written permission. Please do not send detailed medical records through our contact form.

How We Use Your Information

We use the information we collect to:

• Process donations and send receipts and acknowledgments
• Send email updates about CLN4 research and the foundation, if you have signed up
• Respond to your questions and messages
• Organize events and volunteer activities
• Keep accurate financial records and meet legal and tax reporting requirements
• Maintain, secure, and improve our website

How We Share Information

We share personal information only in these limited circumstances:

• Service providers who help us operate, such as our payment processor, email service, and website host. They may use your information only to provide services to us.
• Legal requirements, when required by law, regulation, or legal process, including reporting required of nonprofit organizations.
• With your permission, for example, if you ask us to notify a family that a gift was made in honor of their loved one.

We do not share donor or subscriber information with other organizations for their own fundraising or marketing.

Donations and Payment Processing

Online donations are processed securely by [Payment processor], which handles your payment details under its own privacy policy and industry security standards (PCI DSS). We receive your name, contact details, and gift information so we can acknowledge your donation and provide a receipt.

If you would like to give anonymously, please let us know and we will not list your name publicly.

Email Updates

If you subscribe to email updates, we use [Email service] to send them. Every email includes an unsubscribe link, and you can opt out at any time. We may use standard email features that show whether a message was opened or a link was clicked, so we can improve our updates.

Cookies and Analytics

Our website uses cookies, small files stored in your browser, that are necessary for the site and its forms to work.

We also use Google Analytics to understand how visitors use our site, such as which pages are visited most. Google Analytics collects information such as your approximate location, device, and pages viewed, but does not tell us who you are. You can learn how Google uses this information at How Google uses information from sites that use its services, and you can opt out with the Google Analytics opt-out browser add-on.

You can set your browser to block or delete cookies. Some parts of the site, such as donation or sign-up forms, may not work properly without them.

Links to Other Websites

Our website links to other organizations, such as research institutions and government health resources. We are not responsible for the privacy practices of those websites and encourage you to read their privacy policies.

How We Protect Your Information

We use reasonable administrative, technical, and physical safeguards to protect your information, including encrypted (HTTPS) connections and limiting access to people who need it for foundation work. No method of transmission or storage is completely secure, but we work to protect your information and will respond promptly to any concern.

How Long We Keep Information

We keep donation records for as long as required for tax, accounting, and legal purposes. We keep email subscriber information until you unsubscribe, and contact messages only as long as needed to respond and maintain reasonable records.

Children’s Privacy

Our website is intended for adults. We do not knowingly collect personal information from children under 13. If you believe a child has provided us with personal information, please contact us and we will delete it.

Your Choices

You can:

• Unsubscribe from emails at any time using the link in any message
• Ask what personal information we hold about you
• Request that we correct or delete your information, subject to records we must keep by law
  Ask us not to list your name publicly as a donor

To make a request, contact us at [privacy@hope4batten.org]. We will respond within a reasonable time, generally within 30 days.

Changes to This Policy

We may update this Privacy Policy as our work and website change. When we do, we will post the updated policy here and change the effective date at the top of this page.

Contact Us

If you have questions about this Privacy Policy or how we handle your information, please contact:

Hope 4 Batten Foundation, Inc.
[P.O. Box ###]
Manlius, NY [ZIP]
[privacy@hope4batten.org]